Другие биографии

Список источников >Художественная литература >Биографии. Мемуары >Биографии зарубежных знаменитостей >Другие биографии >

Chasing Miracles: The Crowley Family Journey of Strength, Hope, and Joy

Автор: John F. Crowley
Год: 2012
Издание: [не указанo]
Страниц: 228
ISBN: 1458758257
A personal memoir from the family that inspired the film Extraordinary Measures, starring Brendan Fraser, Harrison Ford, and Keri Russell - a father's story of his determination to save the lives of his two youngest children born with a rare genetic disorder and finding hope, strength, and joy despite extraordinary challenges. When John and Aileen Crowley learned that their two youngest children had a rare and little understood genetic disorder, they didn't hope for miracles: they made them happen. In 1998, 15-month old Megan and 4-month old Patrick were diagnosed with Pompe disease, a rare and fatal neuromuscular disorder that affects only a few thousand children worldwide, usually leaving them with little to no muscle function, enlarged hearts, and severe difficulty breathing. John Crowley was absolutely determined to find a treatment to save his children's lives. At the age of 31, he walked away from the corporate world to help co-found a start-up biotech company, focused...
Добавлено: 2013-10-22 15:37:22

Околостуденческое

Рейтинг@Mail.ru

© 2009-2024, Список Литературы